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Crush It For Curtis Foundation is a 501 (c) (3) charitable organization |EIN 82-3212272

©2019 by Crush It For Curtis Foundation - Bobby The Bladder is ©2019 by Crush It For Curtis Foundation

            

Contact Us Monday - Friday : Phone: 804-629-6429  Toll Free:1-800-403-9152 10 am-4:30 pm EST

BCG Shortage Concerns - Bladder Cancer

February 17, 2019

 

Crush It For Curtis Foundation (CIFCF) is concerned about the current global shortage in BCG treatments for bladder cancer

patients.  We want our community to know our current activities, actions and who are involved to help change the situation.

 

CIFCF has met with our Medical and Scientific Board to understand the impact of the shortage.  We will continue to have an ongoing discussion to evaluate the situation and actions.  We will keep you updated as news becomes available.

 

What you can do as patients, families, caregivers, doctors, and healthcare providers about the BCG shortage?

 

1. Contact the FDA

Call 1-800-835-4709 or email ocod@fda.hhs.gov

Tell them your story, share your experience with the shortage. If you or your doctor have experienced any difficulties in obtaining BCG, let them know. Ask what the FDA will be doing to remedy the situation. 

 

2. The FDA has developed a website https://www.fda.gov/Drugs/DrugSafety/DrugShortages/default.htm which has information on current and resolved drug shortages.

 

3. Contact Merck’s National Service Center

Call 1-800-444-2080

Tell them your story, share your experience with the shortage(s) (past if applicable, and the current 2019 shortage.) Describe any challenges you or your doctor have experienced in obtaining BCG. Note whether you are being treated in community practice or larger academic hospital. Ask what Merck is doing to remedy the situation. 

 

4. Contact National Cancer Institute (NCI)

Call 1-800-422-6237

Information specialists at the Cancer Information Service (CIS), NCI's contact center, are available to help answer your cancer-related questions in English and Spanish whether you are a patient, family member or friend, health care provider, or researcher.  Tell them your story, share your experience with the shortage. If you or your doctor have experienced any difficulties in obtaining BCG, let them know.

 

5. World Health Organization (outside of the U.S)

Call +41-22-7912111

WHO goal is to ensure that a billion more people have universal health coverage, to protect a billion more people from health emergencies, and provide a further billion with better health and wellbeing.

 

6. Report back to CIFCF

Email info@crushitforcurtis.org and let us know the response and reactions you received.

 

7. Be Mindful

  • Talk to your doctor if you are worried about shortages.

  • In most cases, drugs are available or as subsitute is available.

  • Your health care team is working together to minimize the impact of any drug shortages on your treatment.

 

8. Stay Updated

Stay tuned to this page as we will post any updates on the shortage as they become available. You can also visit ASHP for BCG updates.

 

2/20/ 2019 Update:

American Urological Association update:

click here

 

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